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Estimating Long-Term Organ Damage Risk in Patients with Congenital Thrombotic Thrombocytopenic Purpura Receiving Recombinant ADAMTS13 Prophylaxis: A Structured Expert Elicitation Study
Key takeaways
This paper asks six doctors to guess the risk of organ damage in a rare blood disease. It is a survey of expert opinions, not a test on real patients. There are no new results from a clinical trial here.
Who did this work
Amie Padhiar · C. M. Burke · Mathilde Puls · Annie Berkley · Oliver Heard · Harneet Kaur (Takeda (Switzerland)) · Henri B. Wolff · Linda A Murphy
Source
Article · OpenAlex, CKD works · 2026-10-09
https://doi.org/10.1007/s12325-026-03786-y