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Disease trajectories and lived experiences of patients with X-linked hypophosphatemia in Taiwan: a qualitative study.

Key takeaways

This study interviewed 15 patients in Taiwan about their daily lives with a rare kidney disorder. It describes the physical and emotional challenges they face. There are no numerical results or treatment outcomes, just personal experiences.

Who did this work

Liu SY · Tung YC · Hsu CC · Ke YY · Huang YH · Hsu TY · Chin A · Johnson B · Tsai WY

Source

Article · PubMed, Nutritional supplements and CKD · 2026 Oct 13
https://pubmed.ncbi.nlm.nih.gov/42927306/