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SEISMIC: A multi-stakeholder summit addressing access issues in diagnosis and treatment of C3G nephropathy and IC-MPGN

Paper No results yet Peer reviewed

Key takeaways

Doctors, patients, and industry met to discuss C3G and IC-MPGN, two very rare diseases in which part of the immune system stays switched on and damages the kidney's filters. Two newer drugs, iptacopan and pegcetacoplan, calm that immune pathway and have already been shown to work. The problem this report describes is access: many patients are never diagnosed, or cannot get the drugs once they are. This is a meeting report, not a study, so there are no new results.

Source

Paper · Kidney International · 2026-08-27
https://www.kidney-international.org/article/S0085-2538(26)00712-X/fulltext?rss=yes